Have Your Say: Sjögren’s Patient Experiences of Healthcare Survey

We’re inviting adults living with Sjögren’s Disease in the Republic of Ireland to take part in this survey. This survey is part of an ongoing effort to enhance the understanding and management of Sjögren’s.
Why this matters
This survey aims to understand the overall impact of Sjögren’s disease on your daily life, focusing on the treatment and financial burdens. We are interested in the medications you take, the healthcare services you use, and the financial implications of managing Sjögren’s disease.
Your input will help us identify the needs of people with Sjögren’s in Ireland and create recommendations to improve management and support.
What’s involved
Complete an anonymous 20–30 minute survey covering topics on:
— You and your background
— Medication use
— Healthcare service use
— Health-related expenses
— Financial and treatment burden
You can pause and return to the survey at any time. It will remain open until July 2025.
You can complete the survey here: https://lnkd.in/ezVe9fwh or by phone or post.
For more information, contact Jessica Bennett at jessicabennett@rcsi.ie to learn more or to arrange to complete the survey by phone or post.
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